tag:blogger.com,1999:blog-2707050674486835491.post871161341198925589..comments2014-01-27T10:46:31.831-05:00Comments on Putting it ALL Out There: RA Pain (Real Agonizing Pain)Anonymoushttp://www.blogger.com/profile/12021028162445790405noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-2707050674486835491.post-57992957378849503442012-05-01T19:07:51.742-04:002012-05-01T19:07:51.742-04:00I downloaded pictures onto one sheet of paper for ...I downloaded pictures onto one sheet of paper for my doctor...pictures that depicted my pain. A prickly burr for pain in my neck, shards of glass for my hand, wood splinters for my knees, rusty lead pipe for my arms. Will take to new rheumatologist tomorrow. Jeez, you gotta draw pictures for these people!<br /><br />Cherie<br />St. LouisAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2707050674486835491.post-58149379981844793272012-04-29T15:02:21.543-04:002012-04-29T15:02:21.543-04:00My boyfriend has a better understanding after I di...My boyfriend has a better understanding after I did this: <br />I filled a fuzzy mitten with prickly burrs<br />I put glass shards on his hand<br />I taped wood splinters to his knees<br /><br />Cherie in St LouisAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2707050674486835491.post-8006482752758375922012-01-05T14:56:51.313-05:002012-01-05T14:56:51.313-05:00I was diagnosed with RA 14 years ago and had to re...I was diagnosed with RA 14 years ago and had to retire on disability 2 years ago due to the pain and how much medication it took to keep me functioning. I guess you call it functioning I had to make a choice pain meds or driving, working or just going shopping. I feel like I'm in a catch 22. Pain or doing things that we would normally call living. Yes I too feel uneasy when it is time to refill those meds either its too early for the insurance, the government, or the doctor. Why can't I just feel okay that I am experiencing pain and would like consistent relief. I may be physically dependent but I'm not an addict there is a difference.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2707050674486835491.post-16755149685762352892011-08-22T09:55:58.791-04:002011-08-22T09:55:58.791-04:00Rachel - your post could have been about me! I had...Rachel - your post could have been about me! I had to finally give up on my Rheumy and my PC for effective pain relief and go to a pain management doctor. Perhaps that could help you. Let them know you want to REALLY be there for your kids without being so drugged you can't function. The meds I take have gotten a lot of WOW's out of people - but what else is there to do? I get relief. About the only thing I am grateful for is that I no longer have small children to worry about. My 18yo is demanding enough with all the Senior stuff to do already. Anyway - thank you for posting this. I pray you get some good relief soon.Doreenhttps://www.blogger.com/profile/07632715693244889256noreply@blogger.comtag:blogger.com,1999:blog-2707050674486835491.post-80485046345056932602011-08-22T07:50:39.788-04:002011-08-22T07:50:39.788-04:00Thank you...all of you. This has been a most thera...Thank you...all of you. This has been a most therapeutic opportunity and I am so elated to have been a part of it. Sometimes, RA and all that comes with it, can be overwhelming...and isolating. While I have many that are genuine in their concern, I understand that it is hard for them to really know what living with chronic pain, with RA, can be like. It is nice to hear from all of you. Nice to not feel alone. Thank you so much for your comments and support. I wish you all...so much. ~RachelAnonymoushttps://www.blogger.com/profile/12021028162445790405noreply@blogger.comtag:blogger.com,1999:blog-2707050674486835491.post-92103413100514535142011-08-22T00:39:26.334-04:002011-08-22T00:39:26.334-04:00Thank you - you are my hero! These are my experien...Thank you - you are my hero! These are my experiences exactly! Best wishes to you and your family! CherylAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2707050674486835491.post-6377864828790923622011-08-20T18:49:54.863-04:002011-08-20T18:49:54.863-04:00Although I am fortunate enough to have a rheum doc...Although I am fortunate enough to have a rheum doc who knows I am in pain, I, too, wish all rheums could walk in our shoes for a week or a month every so often. I wish they knew - really <em>knew</em> just how bad our pain and joint stiffness really are. There are "pregnancy vests" that help people understand some of the discomforts of pregnancy - why not an "arthritis suit" to help people understand some of the discomforts of RA? Just a thought - maybe all us RAWarrior fans could come up with something?<br />Cheerio!<br />ElizabethAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2707050674486835491.post-88260884008937737812011-08-19T21:19:35.667-04:002011-08-19T21:19:35.667-04:00Ugh, there are too many people with RA and other c...Ugh, there are too many people with RA and other chronic illnesses that have uncontrolled symptoms, pain being one of them. <br /><br />You're not alone in this. Which is unfortunate that it's so common.Melissahttps://www.blogger.com/profile/02491795869831026753noreply@blogger.comtag:blogger.com,1999:blog-2707050674486835491.post-40795418965126544762011-08-19T15:07:20.082-04:002011-08-19T15:07:20.082-04:00Hi Rachel,
tears... i have a 2year old - i was di...Hi Rachel,<br />tears... i have a 2year old - i was diagnosed while pregnant. I hear you. I understand. I am lucky to have a good rheumy, but i too am constantly battling with the thought that if I take too many pain pills, then they may not work for me later. I am 34... just wanted to let you know you are not alone in this.<br />Annekejaszyperskihttps://www.blogger.com/profile/17682597276514628268noreply@blogger.comtag:blogger.com,1999:blog-2707050674486835491.post-25252665548710432282011-08-19T14:35:55.123-04:002011-08-19T14:35:55.123-04:00Oh Rachel. I am so sorry you are going through th...Oh Rachel. I am so sorry you are going through this. My 9 year old told me recently that whenever she "wishes on anything. You know, like a star? Well I wish that you didn't have RA anymore." I am pretty functional but not like I was. I'm not the mom who ran the 2003 Oklahoma City Marathon anymore. I hope that you find a doctor who listens and ways to control and diminish the pain so you may once again be the mom you want to be. That said, you are an incredible mom as you are; simply a different one.<br /><br />JenAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2707050674486835491.post-9736203290724343902011-08-19T11:09:26.284-04:002011-08-19T11:09:26.284-04:00Your post brought tears to my eyes. When will ra b...Your post brought tears to my eyes. When will ra become recognized as a chronic condition that needs consistent and constant pain treatment. I have had ra for 13 years and still no progress on this front. Why? This voice for pain management on ra needs to be heard loud and clear across this nation...in fact...across the world.Deb aka AbcsOfrahttps://www.blogger.com/profile/12619087592028571941noreply@blogger.comtag:blogger.com,1999:blog-2707050674486835491.post-25039712742608934002011-08-19T07:18:29.049-04:002011-08-19T07:18:29.049-04:00Rachel,
I too have recently been diagnosed with R...Rachel,<br /><br />I too have recently been diagnosed with RA. I like you was experiencing horrible pain all over my body. At night I couldnt move without a lot of pain, I had trouble getting out of bed and when I did, I couldnt hardly walk to the bathroom! I am on a lot of medicine now(I have an Rheumy who beleives in helping the pain, thank goodness!) I hate being on all of this medicine, but it is giving me my life back. I have always had a pretty high pain tolerence but RA has kicked my butt!! I hope you find relief soon and a dr. who understands your pain.Nonnas Newshttps://www.blogger.com/profile/14459588647203908856noreply@blogger.comtag:blogger.com,1999:blog-2707050674486835491.post-5995154629662964932011-08-15T20:02:34.143-04:002011-08-15T20:02:34.143-04:00Rachel,
I'm so grateful to read this post beca...Rachel,<br />I'm so grateful to read this post because you put my own experiences and feelings into words so clearly.<br /><br />I'm also very sorry to read it because in order to say this so well, you have had to go through a very tough two years.<br /><br />Here's hoping we both find relief and docs who get it some day.Kelly Younghttp://rawarrior.comnoreply@blogger.com